Wednesday, May 12, 2010

Rowe Update

I had just begun typing my post when I received a call that another doctor would take a look at Rowe's videos.
We called and bugged the nurse yesterday until we had an appointment set up for Rowe's CT Scan and EEG tests here in Columbus. Unfortunately, they could not run the tests until June 1st. Three weeks is a long time to wait!!! The doctor also prescribed Rowe a seizure medicine to start tonight, but the more research I have done, I am afraid to give it to him. I am going to wait until we have a diagnosis before I medicate him with anything that strong. I know some may disagree, but this is the decision we believe is best for our Rowe Bug.
I nervously loaded Rowe Bug into the car and headed to the doctor's house who agreed to see him tonight. He thought that Rowe was having tics and a sleep disorder. He also said that he could get us in to see the specialist in Memphis pretty quickly to have Rowe's tests run sooner than June 1st.

Of course, I loved hearing him say it didn't look like Rowe was having seizures, and that it looked like a tic, but I knew that each person I probably saw would have a different opinion. So far Rowe's pediatrician and our favorite, most trusted nurse in the world also feels it is a strong possibility that he is having petit mal seizures, and then there is one doctor who thinks it is a tic. There is no way for us to know for sure until the tests are run. I am so thankful for the possibility of Rowe being tested at a sooner date.

I can not dwell on the "what ifs" or I will go nutso(er). I choose to trust that God knows His plans for Rowe, and I will take this time to pray for Rowe and his doctors. I also choose to be thankful that we caught this very early, our favorite nurse gave us the push we needed to take him to see the doctor in the first place, that all his possible problems are manageable, and that we have such supportive and wonderful family and friends. God has given me a peace that passes all understanding, which is not normal for me. I typically worry and am anxious more than I would like to admit, but I am trusting in His sovereign plan. Don't get me wrong, I am not happy go lucky about this. I had my meltdown today in the arms of a precious hug of a friend that has walked through most all of my struggles with me. I am sure there will be more, especially with very little rest.

Please continue to pray for our baby and our family. Many of you helped pray our little dude here, and I know you will continue to pray for him. Thank you again for your prayers.

1 comment:

Anonymous said...

We are praying for you.

The Cannadys