Normally, I would not post what I am about to share until after we had all of our test results in and we knew exactly what we are dealing with, but I am learning that transparency and prayers are better than living a private life.
Quick Synopsis: We took Rowe to the pediatrician yesterday because he has been having blinking episodes very often, and it effects his whole body. We showed the doctor the videos that Lee had taken of him during some of these episodes, and his first response to us was, "He's having seizures." Well, we feared hearing those words, but I didn't realize how it deep it would hurt to hear them. His nurse is setting up a CT Scan and EEG for Rowe this week. We should have the results within a few days if all goes as planned. We will wait until the results come back to know what we will do next. If he is right, and it is seizures, then we will go to a specialist either in Birmingham, Jackson, or Memphis.
We are so grateful that every possible scenario that the doctor gave us is manageable with medication. We are also glad that Rowe is completely oblivious to these episodes when they happen. He does not even notice them, so that is such a relief to us. The only part of all this that has affected him is he no longer sleeps well. He has screaming, jerking, and crying fits every night that are anywhere from off and on all night to hours at a time straight.
We are praying for specifically for three things, and we ask you to do the same:
1. We pray that these are not seizures, and that it is only a tic. Children usually grow out of tics within months. We are praying for clear test results and wisdom for the doctors. Hopefully the nurse will call us today with his appointments.
2. We are also praying that he will be able to sleep comfortably again. It is tough watching him scream and kick while we try to wake and console him.
3. Please also pray for Lee and I plus the rest of our family as we try to climb our way over this hill. Pray we have the strength, grace, and wisdom to give God the glory no matter what we face.
I will continue to update our blog as we learn more. Just keep checking back here instead of calling us right now with questions. We are still trying to process all of this, and really are not quite up to talking yet. We are broken hearted, but hopeful that our Rowe Bug is perfectly healthy. Thank you for your much needed prayers!
12 years ago
10 comments:
Oh Celeste--
Praying for little Rowe and your family!!!!
Oh Celeste, as a mama, my heart breaks for you. If you need anything at all, please dont hesitate to ask. We are here for you.
Celeste, we're praying here in Chattanooga during this difficult time.
Praying for you. We have been through unexpected times with both of ours and worried for no reason- really because God was in control the whole time. Know that Carmen and I will be praying for you both.
Celeste - You, Lee, and Rowe are in our prayers. If you come to the doctor in Memphis, please do not hesitate to call if you need a place to rest or stay.
Lee and Celeste,
Praying for Rowe's complete healing and strength for you all to make it through getting the testing and evaluations that will be done...praying a hedge of protection to surround your family and for the Lord to go before you and prepare the hearts of those who will be making the appointments and conducting the tests.
Celeste- please know that I am praying for you and your precious family. I can't imagine how hard this must be for you two. Please keep us posted.
-McCall
Definitely praying for you!
Wow, Celeste...I am heartbroken for you and the uncertainess but yet know that OUR GREAT BIG GOD knew this from before Rowe was born and HE is completely and perfectly in charge...HE WILL BE FAITHFUL TO COMPLETE WHAT HE STARTED IN ROWE with perfection!! I love you and will pray for Rowe Bug with Camel and pray for healing and peace in sleep!
Count on our prayers; remember He is right by your side every step of the way....and He loves Rowe even more than you do, which is hard to fathom, but true!
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